FAQ: Fifth Annual Sickle Cell Caregiver Summit 2025
TL;DR
Caregivers can gain practical advocacy tools and mental wellness strategies from this summit to better navigate healthcare systems and improve patient outcomes.
The virtual summit runs November 13-16 with daily workshops, family-centered programming, and mental health sessions designed by caregivers for caregivers.
This summit creates a supportive community where caregivers transform pain into purpose, advancing health equity and improving lives affected by sickle cell disease.
Attendees will enjoy interactive games, prizes, and an exclusive screening of an upcoming sickle cell docuseries by filmmaker Janks Morton.
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The Sickle Cell Caregiver Summit is an annual virtual conference that brings together caregivers, patients, healthcare providers, and advocates for four days of education, empowerment, and inspiration, focusing on balancing mental wellness, advocacy, and legacy in sickle cell caregiving.
The Fifth Annual Sickle Cell Caregiver Summit takes place virtually from November 13-16, 2025, allowing global participation from anywhere with internet access.
The summit is organized by the Sickle Cell Community Consortium in collaboration with Cleverly Changing, LLC, The B Strong Group, and Discovering Moorer2Life, with Vertex Pharmaceuticals as Title Sponsor and Pfizer Pharmaceuticals as Platinum Plus Sponsor.
Key highlights include daily mental health and wellness workshops, family-centered programming for different caregiver roles, interactive games and prizes, and an exclusive screening of an upcoming sickle cell docuseries by filmmaker Janks Morton.
The summit invites caregivers, patients, healthcare providers, and advocates from across the globe, with specific programming tailored for parents, siblings, spouses, and extended family members involved in sickle cell caregiving.
Registration is open at scdcaregivers.org, and for media inquiries, sponsorships, or partnerships, contact info@sicklecellconsortium.org.
This summit is significant because it's one of the largest caregiver-led conferences that amplifies caregiver voices, creates a safe space for learning and healing, and bridges the gap between research and real-life patient experiences in the sickle cell community.
The main organizing organizations include the Sickle Cell Community Consortium (SC3), Cleverly Changing, LLC (a health-focused media company), The B Strong Group (a nonprofit empowering sickle cell families), and Discovering Moorer2Life.
Curated from 24-7 Press Release
