FAQ: Cayenne Wellness Center's 17th Annual Sickle Cell Disease Educational Summit
Summary
Cayenne Wellness Center is hosting its 17th Annual Sickle Cell Disease Educational Summit, a four-day hybrid event from September 17–20, 2025, focused on advancing education, advocacy, and awareness for sickle cell disease and trait through diverse sessions and special events.
What is the Cayenne Wellness Center’s Sickle Cell Disease Educational Summit?
It is a four-day hybrid event dedicated to advancing education, advocacy, and awareness for sickle cell disease and trait, featuring sessions on treatments, advocacy, pain management, and specialized tracks for patients and healthcare professionals.
When and where is the summit taking place?
The summit is scheduled for September 17–20, 2025, and will be held both in person in San Jose, CA, and online, accommodating over 200 in-person and 100 virtual attendees.
Who is the target audience for this event?
The summit is designed for healthcare professionals, educators, social workers, students, individuals with sickle cell disease, their families, and the broader community.
What is the theme of this year’s summit?
The theme is ‘Let’s Talk About Pain: The Seen and Unseen,’ focusing on exploring both the visible and invisible realities of pain associated with sickle cell disease.
What are some highlights or special events at the summit?
Highlights include a tribute to Golden Warriors (individuals aged 70+ with sickle cell disease), a Doctor to Doctor event, an Awards & Benefit Concert featuring Dee Dee Simon, the SCAR Stories Exhibit, and a private screening of the documentary ‘You Look Fine.’
How can I register or get more information about attending?
You can register and book a room through the official link: https://cayennewellness.org/scd-educational-summit-2025.
What topics are covered in the agenda?
The agenda includes FDA-approved therapies, emerging treatments, curative options, advocacy, ER experiences, incarcerated care, nurse training, sickle cell trait education, newborn screening, keynote sessions, tributes, and specialized tracks for patients and physicians.
Is there a specific event for healthcare professionals?
Yes, the ‘Doctor to Doctor’ event on September 19, 2025, from 6:00 PM to 8:30 PM PST in Oakland, CA, features nine doctors living with sickle cell disease sharing their experiences to rethink approaches to pain, trust, and treatment.
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